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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Basal cell carcinoma risk prediction in survivors of childhood cancer

    2025

    Citation: Epub Aug 20, 2025

    Author(s): Im C, Boull C, Lu Z, Liao K, Hasan H, Xu L, Sapkota Y, Howell RM, Arnold MA, Conces MR, Housten AJ, Gebauer J, Langer T, Teepen JC, Kremer LCM, Constine LS, Yasui Y, Hudson MM, Ness KK, Armstrong GT, Neglia JP, Yuan Y, Turcotte LM

    Journal: J Natl Cancer Inst

  • Cardiomyopathy screening adherence among Medicaid-enrolled long-term survivors of childhood cancer

    2025

    Citation: In Press

    Author(s): Hu X, Castellino SM, Srivastava DK, Nathan PC, Armstrong GT, Snyder C, Kirchhoff AC, Ji X

    Journal: Cancer Med

  • Colorectal-specific radiation dose and chemotherapy risk for subsequent colorectal malignancies in childhood cancer survivors: a Childhood Cancer Survivor Study (CCSS) report

    2025

    Citation: In Press

    Author(s): Owens CA, Ludmir EB, Liu A, Qui W, Gupta AC, Smith SA, Rigaud B, Brock KK, Bates JE, Meyers TG, Paulino AC, Peterson CB, Kry SF, Teepen JC, Ronckers CM, Neglia JP, Leisenring WM, Oeffinger KC, Nathan PC, Turcotte LM, Hodgson DC, Hudson MM, Robison LL, Moskowitz CS, Armstrong GT, Yasui Y, Henderson TO, Howell RM

    Journal: J Clin Oncol

  • Model-based estimates of long-term survival, breast cancer, and cardiac risks in pediatric Hodgkin lymphoma survivors following historical reductions in radiotherapy

    2025

    Citation: In Press

    Author(s): Rogers JR, Ward ZJ, Stratton KL, Leisenring WM, Taylor SC, Armstrong GT, Chow EJ, Feraco A, Howell RM, Hudson MM, McMahon M, Morton LM, Oeffinger KC, Smith SA, Diller L, Yeh JM

    Journal: J Clin Oncol

  • Body mass index, physical activity, and subsequent neoplasm risk among childhood cancer survivors

    2025

    Citation: 11(8):835-845

    Author(s): Joffe L, Mirzaei S, Bhatia S, Darji H, Ness KK, Onerup A, Ladas EJ, Im C, Lupo PJ, Oeffinger KC, Friedman DN, Howell RM, Conces MR, Arnold MA, Armstrong GT, Neglia JP, Yasui Y, Kadan-Lottick NS, Turcotte L

    Journal: JAMA Oncol

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